I think all of the research is so exciting. To think 25 years ago when Shelby was diagnosed, nobody knew anything. From 1998 to 2019 we had to educate any doctor or facility we saw because they had never heard anything about Chromosome 8 abnormalities. Even though most of our doctors have been pretty well "trained" now (haha) it is always nice to have new information to pass on to them! I am super excited that our very young and future heroes will not have to feel like they are on a solo journey without a map!
I think all of the research is so exciting. To think 25 years ago when Shelby was diagnosed, nobody knew anything. From 1998 to 2019 we had to educate any doctor or facility we saw because they had never heard anything about Chromosome 8 abnormalities. Even though most of our doctors have been pretty well "trained" now (haha) it is always nice to have new information to pass on to them! I am super excited that our very young and future heroes will not have to feel like they are on a solo journey without a map!